Sunday, 28 December 2014

Christmas 2014

Last Christmas Lucy had her manipulation early December and was in her first Halo for Christmas. We had hospital appointments every week, including Boxing Day where she had to have a scan.

This year was so different. Lucy was back at school, even though it's only part time at least she was able to take part in the Christmas music concert where she was on the stage with her class playing the ukulele. She decided against going to the school Christmas party because she was afraid that she may get hurt if the kids became a little rowdy.

I treated her to a lovely Classical Christmas concert at Symphony Hall on December 20th. She was great during the first half, but during the interval she spotted the ice cream lady. At £5 each for a small tub I couldn't let her have any (there were four of us and I'd left my card at home so only had what little cash I had in my purse, which I was saving for Mc Donalds afterwards) The lack of ice-cream brought on a sulk, and moan because my poor girl was STARVING! (It was only 3.30pm and she'd had a huge lunch!)

She soon got back into singing along with the Christmas Carols. I think maybe the whole concert was a little too long for her though, because by the end she was cramped up and her knees and ankles where hurting.

Then on 23rd December we went to see the play, The Tiger Who Came to Tea at the Town Hall. Again she was a little moody, but she was fine during the show, she even managed a dance and sing along.

Christmas Eve she went straight to sleep. I think if her sister hadn't been so tired she fell asleep as soon as her head hit the pillow, then Lucy may have kept her awake talking for a while. She didn't wake her though and was soon sleeping soundly herself. Right up until 5.30am!

She loved opening her presents, but as soon as she was done she was on the PC playing Elsword, her latest game addiction. She has been awkward to buy for this year, no Christmas list, no yelling at adverts 'Can I have that' no telling Father Christmas what she was a secret even from the big man himself. There was one Pokemon toy she had shown an interest in one day when we were shopping, I went back to buy it.

During the day she played with the Pokemon toy with her big brother for about 1/2 hour and Jenga with her sister for about 20 mins. She played with her little brother's playdough for a little while and she read one of her new books for around an hour. Everything else is still untouched, even her selection boxes and chocolate snowman.

Now, she is waiting to go back to school because she is bored!

Saturday, 6 December 2014


Lucy has had a migraine before, and I am a regular sufferer of migraines so we are pretty used to them in our house. This week, however, has been a little scary to say the least.

First up, Lucy's little brother was poorly. Then Lucy got sick too. She was starting to feel better when she had a really bad night complaining of ear ache. In the morning she didn't want to move so I let her lie on the sofa with a blanket all day and she just drifted in and out of sleep. I kept her topped up with fluids and regular doses of Calpol.

She ate little throughout the day and was very weak by bedtime. I figured that as she had slept for most of the day she would be awake all night, but she wasn't. She woke up early though, about 4.30am and sent her sister in to fetch me. (she still has trouble getting out of bed, particularly if she's not feeling well)

She was hot and complaining of headache. I took her temperature but it was 37.5 so high but not too high. I gave her Calpol and a my cold band for her forehead. She went back to sleep on the sofa. It was obvious to me that she had a migraine, but it didn't seem to be improving so I started to worry. I gave her one of those migraine pads but she said it hurt. I think maybe her wounds, although healed, may be a little too sensitive still.

As she was so poorly I began to worry that maybe it was meningitis. It's always wise to be cautious. So I started the checklist. She had been sick, but had recovered. She was hot but not feverish, her hands and feet were not cold. She was drowsy, had barely been awake in 36 hours. She was confused and irritable, she had a pounding headache, she was sensitive to bright lights (but she is often anyway) She did not have any type of rash or blotchy skin.

Then came the neck test...can you put your chin to your neck...Lucy can't do that anyway since the fixation. Does your neck feel stiff...mmm, yes all the time, is there any pain in your neck..yes, all the time. This is one of the first things you check when testing for meningitis and I can't do this with Lucy.

So, I went with my gut instincts and decided that because she wasn't feverish then it wasn't meningitis. Stop panicking and just keep caring for her.

I trusted my instincts but still had moments of doubt, maybe I should have taken her to A&E. There was another sleepless night ahead for me while I checked on her every hour, taking her temperature each time and being prepared to change my instincts at any sign of fever. She slept on like a baby.

Then she woke up and said she felt better. She has been a bit sensitive all day, just like I am when I am recovering from a migraine. It was a migraine, a really bad one. I know how horrible they are and really feel for her....but thank heaven my instincts were right.

A Day in the Life

 I've decided that I want to write things down for a couple of reasons. One is that I find it helpful to put it down to talk about it in...