Skip to main content

Christmas 2014

Last Christmas Lucy had her manipulation early December and was in her first Halo for Christmas. We had hospital appointments every week, including Boxing Day where she had to have a scan.

This year was so different. Lucy was back at school, even though it's only part time at least she was able to take part in the Christmas music concert where she was on the stage with her class playing the ukulele. She decided against going to the school Christmas party because she was afraid that she may get hurt if the kids became a little rowdy.

I treated her to a lovely Classical Christmas concert at Symphony Hall on December 20th. She was great during the first half, but during the interval she spotted the ice cream lady. At £5 each for a small tub I couldn't let her have any (there were four of us and I'd left my card at home so only had what little cash I had in my purse, which I was saving for Mc Donalds afterwards) The lack of ice-cream brought on a sulk, and moan because my poor girl was STARVING! (It was only 3.30pm and she'd had a huge lunch!)

She soon got back into singing along with the Christmas Carols. I think maybe the whole concert was a little too long for her though, because by the end she was cramped up and her knees and ankles where hurting.

Then on 23rd December we went to see the play, The Tiger Who Came to Tea at the Town Hall. Again she was a little moody, but she was fine during the show, she even managed a dance and sing along.

Christmas Eve she went straight to sleep. I think if her sister hadn't been so tired she fell asleep as soon as her head hit the pillow, then Lucy may have kept her awake talking for a while. She didn't wake her though and was soon sleeping soundly herself. Right up until 5.30am!

She loved opening her presents, but as soon as she was done she was on the PC playing Elsword, her latest game addiction. She has been awkward to buy for this year, no Christmas list, no yelling at adverts 'Can I have that' no telling Father Christmas what she was a secret even from the big man himself. There was one Pokemon toy she had shown an interest in one day when we were shopping, I went back to buy it.

During the day she played with the Pokemon toy with her big brother for about 1/2 hour and Jenga with her sister for about 20 mins. She played with her little brother's playdough for a little while and she read one of her new books for around an hour. Everything else is still untouched, even her selection boxes and chocolate snowman.

Now, she is waiting to go back to school because she is bored!


Popular posts from this blog

Talking about Autism

I've realised that I've focused a lot on Lucy's problems in this blog and I have kind of neglected talking about her autism. This week has had me thinking a lot about it.

I normally love the Easter Holidays but I have to admit that the past fortnight have been the worst holiday yet. It doesn't help that I have poor mobility and we no longer have a car so going out anywhere is more difficult. It's hard to get Lucy out, but when we had the car we could just bundle her in and she'd soon calm down. We have to get her to agree to go out on public transport, and she has to be feeling fit enough to cope with the walking.

So, we've spent a lot of time indoors and cabin fever has arisen. Lucy would be happy to stay indoors if she was allowed to spend the whole time on her PC, but we do have to limit screen time for all the kids. The girls have picked up a new  hobby of customising Littlest pet Shop figures. This involves using clay to make extra parts and painting t…

The School Residential Trip

Last year we had a letter from the school about a residential trip  that is taking place in February. I threw the letter away, my first instincts were that this was not going to work for Lucy.

Then last week we had a call from the school and he spent over half hour talking about the trip and what it would involve, how it would benefit Lucy and that she had said at school that she wanted to go. I said we would think about it.

First I spoke to Lucy. I asked her if she wanted to go and she told me excitedly that there was going to be a disco on the last night. I asked her again, 'do you want to go then?' She said 'can I go to the party but not stay overnight?' I told her no, that's not possible. She cried. 'I don't want to go, I don't want to stay away from home.'

She has stayed away from home before, a few times actually. But she really doesn't want to stay away with the school.

I decided to take a close look at the place where they are going. I w…

Rotary Subluxation of the Atlanto Occipital Joint

Lucy was first admitted to hospital in August. She had been diagnosed as having a rotary subluxation of the atlanto occipital joint. Now, I had no idea what this meant at first, other than it was a bone in her neck that had moved.

The atlanto-occipital joint is the top join of the cervical spine which connects to the skull. It is very rare for this joint to move, it is slightly more common for the atlanto axial joint to move, especially when involved in an accident. My little girl did not have an accident, the bone moved by itself, probably due to lax muscle control holding it in place. I'm still not completely sure why it moved, neither are the doctors, but I do hope to find out.

First the doctors talked about manipulation, then they talked about traction. They spent five days locating a traction bed for Lucy, then changed their minds. In the end we were sent home with a Miami J collar and regular physio appointments. The only treatment she had been given in hospital was muscle r…